PPMD’s Duchenne Professionals Masterclass Agenda

We are pleased to offer ten stand-alone courses to allow the professional to create a customized curriculum meeting the learner's unique educational needs, spanning from new-to-Duchenne professionals to seasoned experts in the field.

Participants are eligible to receive continuing education credit upon successful completion of each course — please see individual courses for more information. 

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Course 1: Introduction to Duchenne Muscular Dystrophy

  • Module 1: The Basics of Duchenne
    Edward Smith, MD
    Duke Children’s Hospital
  • Module 2: The Role of Modifying Genetics in Genotype-Phenotype Correlation
    Stanley Nelson, MD
    UCLA
  • Module 3: Carrier Care - Testing and Management of Female Dystrophinopathy
    Kevin Flanigan, MD
    Nationwide Children’s Hospital
  • Module 4: Why Multi-Disciplinary Pediatric Care is So Critical
    Wendy Chouteau, DNP, APRN, FNP-BC
    Cincinnati Children’s Hospital Medical Center
  • Module 5: The Key to Successful Transition
    Christina Trout, RN, MSN
    University of Iowa
  • Module 6: The PPMD Certified Duchenne Care Center Program
    Rachel Schrader, MS, APRN, CPNP-PC
    Parent Project Muscular Dystrophy

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this live activity for a maximum of 3.0 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 3.0 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.3 CEUs for this program.

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Course 2: Subspecialty Care Considerations

  • Module 1: Duchenne Care Considerations
    Mena Scavina, DO
    Nemours/Alfred I. duPont Hospital for Children
  • Module 2: Cardiac Care
    Linda Cripe, MD
    Nationwide Children’s Hospital
  • Module 3: Pulmonary Care
    Rich Kravitz, MD
    Duke Children’s Hospital
  • Module 4: Endocrinology Care – Bone Health
    Leanne Ward, MD, FRCPC
    University of Ottawa
  • Module 5: Endocrinology Care – Growth and Puberty
    Rob Benjamin, MD
    Duke Children’s Hospital
  • Module 6: Gastrointestinal and Nutrition Care
    Kent Williams, MD
    Nationwide Children’s Hospital
  • Module 7: Psychosocial Care
    Seth Sorensen, PhD
    Arkansas Children’s Hospital
  • Module 8: Physical and Occupational Therapy Considerations
    Claudia Senesac, PT, PhD, PCS
    University of Florida

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this internet enduring activity for a maximum of 3.0 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 3.0 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.3 CEUs for this program.

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Course 3: Demystifying Duchenne Data Collection

  • Module 1: MD STARnet Overview
    Emma Ciafaloni, MD
    University of Rochester
  • Module 2: The Duchenne Registry
    Ann Martin, MS, CGC
    Parent Project Muscular Dystrophy
  • Module 3: Creative Solutions for Sharing Data
    Mary Schroth
    CureSMA
  • Module 4: Duchenne Outcomes Research Interchange
    David Voccola
    Prometheus Research

    Ryan Fischer
    Parent Project Muscular Dystrophy

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this internet enduring activity for a maximum of 1.25 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 1.25 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.1 CEUs for this program

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Course 4: Emerging Therapeutics

  • Module 1: Animal Models – What They Mean and What They Don’t
    Dominic Wells, PhD
    Royal Veterinary College, London
  • Module 2: Current Research Strategies – Basic Science
    Lee Sweeney, PhD
    University of Florida
  • Module 3: Current Research Strategies – In the Clinic
    Craig McDonald, MD
    UC Davis
  • Module 4: The Platform Trial
    Jane Larkindale, DPhil
    Critical Path Institute

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this internet enduring activity for a maximum of 2.0 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 2.0 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.2 CEUs for this program.

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Course 5: Accessing Care and Approved Therapies

  • Module 1: Access and Reimbursement
    Ryan Fischer
    Parent Project Muscular Dystrophy
  • Module 2: Equitable Access to Clinical Trials and Approved Therapies
    Alison Bateman-House, MPH, PhD
    NYU
  • Module 3: Equitable Access to Care – Lessons Learned from the MS Project
    Pat Furlong
    Parent Project Muscular Dystrophy
  • Module 4: The Regulatory Process Explained
    Tim Franson, MD
    Faegre Drinker Consulting

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this internet enduring activity for a maximum of 1.75 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 1.75 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.1 CEUs for this program.

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Course 6: About Parent Project Muscular Dystrophy (PPMD)

  • Module 1: Historical Perspectives of Duchenne Legislation
    Pat Furlong
    Parent Project Muscular Dystrophy
  • Module 2: Resources and Community Education
    Amanda Wilkison, RN, BSN
    Parent Project Muscular Dystrophy
  • Module 3: Engaging with the Community
    Nicole Herring
    Parent Project Muscular Dystrophy
  • Module 4: Partnering with the Community to Drive Drug Development
    Eric Camino, PhD
    Parent Project Muscular Dystrophy

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this internet enduring activity for a maximum of 1.0 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 1.0 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.1 CEUs for this program.

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Course 7: Viral Based Therapies

  • Module 1: Viral Therapy Basics – Serotypes and Production Approaches
    Jim Wilson, MD, PhD
    UPenn
  • Module 2: Immune Issues – Innate and Acquired, and How to Treat
    Tim Cripe, MD, PhD, FAAP
    Nationwide Children’s Hospital
  • Module 3: Durability of Viral Therapies Over Time
    Lee Sweeney, PhD
    Parent Project Muscular Dystrophy

    Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this internet enduring activity for a maximum of 1.5 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 1.5 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.1 CEUs for this program.

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Course 8: Lessons Learned from Gene Therapy

  • From Testing to Treatment: Immunity Explained
    Jerry Mendell, MD
    Nationwide Children’s Hospital
  • Experiences in Gene Therapy: Having Hard Conversations
    Edward Smith, MD
    Duke Children’s Hospital
  • Panel Discussion: What Would You Tell a Center About to Embark on Gene Therapy?
    Moderator: Pat Furlong
    Parent Project Muscular Dystrophy

    Jerry Mendell, MD
    Nationwide Children’s Hospital

    Edward Smith, MD
    Duke Children’s Hospital

    Russell Butterfield, MD, PhD
    University of Utah
    Perry Shieh, MD, PhD
    UCLA

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this live activity for a maximum of 1.0 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 1.0 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.1 CEUs for this program.

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Course 9: Navigating Informed Consent and Screen Fails

  • The Nature of Truly Informed Consent
    Kevin Flanigan, MD
    Nationwide Children’s Hospital

  • Counseling Families Through Fear and Failure: A Conversation about Screen Fails
    Colleen Labbadia
    Parent, Florida

    Kevin Flanigan, MD
    Nationwide Children’s Hospital

    Erica Goude, MS, CCRP
    UC Davis
  • Resiliency: Caring for Ourselves, So We Can Care for Our Patients
    Brandon Kozar, PsyD, MBA
    Nationwide Children’s Hospital

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this live activity for a maximum of 1.25 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 1.25 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.1 CEUs for this program.

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Course 10: Crisis Management – Lessons Learned from the COVID-19 Pandemic

  • Duchenne and COVID-19 Incidence and Outcomes: Is Duchenne a Risk Factor?
    Jeffery Auletta, MD
    Nationwide Children’s Hospital

  • Implementation of Telehealth: Success and Opportunities for Growth
    Oren Kupfer, MD
    Children’s Hospital Colorado
  • Crisis Planning: How to Prepare for the Next “Big One” with Innovative Solutions
    Sue Apkon, MD
    Children’s Hospital Colorado
  • Question & Answer
    Moderator: Rachel Schrader, MS, APRN, CPNP-PC
    Parent Project Muscular Dystrophy

  • Category 1: Duke University Health System Department of Clinical Education and Professional Development designates this live activity for a maximum of 1.0 AMA Category 1 Credit(s)TM. Physicians should claim only credit commensurate with the extent of their participation in the activity.

    Nurse CE: Duke University Health System Department of Clinical Education and Professional Development designates this activity for up to 1.0 credit hours for nurses. Nurses should claim only credit commensurate with the extent of their participation in this activity.

    IACET: Duke University Health System Clinical Education and Professional is authorized by IACET to offer 0.1 CEUs for this program.

Purchase Course




In support of improving patient care, the Duke University Health System Department of Clinical Education and Professional Development is accredited by the American Nurses Credentialing Center (ANCC), the Accreditation Council for Pharmacy Education (ACPE), and the Accreditation Council for Continuing Medical Education (ACCME), to provide continuing education for the health care team.

Duke University Health System Clinical Education and Professional is accredited by the International Association for Continuing Education and Training (IACET) and is authorized to issue the IACET CEU.